Month: December 2010

A Network of Resources Provide Support for People with MS

Jane’s story this month illustrated just one experience with MS; the unpredictability of the disease causes everyone with MS to experience it in a different way. But many people also struggle with similar challenges. MS attacks  the central nervous system of the individual diagnosed, but its impact has a ripple effect on their family, career, life plan, and the community.

This week we share the comprehensive resources available to all people with MS, their families, friends, and providers.

To learn about multiple sclerosis:
The National Multiple Sclerosis Society website has extensive information  on MS.
www.nationalmssociety.org
You can also call ourInformationResourceCenterat 800-344-4867.

To learn about local programs:
The Greater New England Chapter serves 19,000 individuals and families affected by multiple sclerosis inMaine,Massachusetts,New Hampshire, andVermont.
www.msnewengland.org

If you or a loved one is Newly Diagnosed:
You can receive information through our Knowledge is Power Program, a free, at-home educational series written by Dr. Rosalind Kalb, a highly regarded author and psychologist. Receive new topics each week in the convenience of your home.
Knowledge is Power

 

If you would like to speak to a peer with MS:
The Peer Support Program offers information, emotional support and encouragement via the telephone to individuals living with MS and their families. The program matches trained volunteers with individuals looking for support with their own MS experiences.
Peer Support Program

If you would like to learn about the Greater New England Chapter’s Financial Assistance Program:
We recognize that MS is a costly disease and encourage all individuals who need help to apply. Any person diagnosed with MS, living in Maine, Massachusetts, New Hampshire or Vermont is eligible. The Chapter can provided limited funding in select categories.
Financial Assistance Program

If you feel you need more comprehensive support:
Home LINKS is the Greater New England Chapter’s short-term care management program. The goal of Home LINKS is to promote enhanced quality of life and independence for people living with MS. This program helps by providing information and referral, hands-on assistance, and financial assistance.
Home LINKS

If you are a professional who works with people with MS:
The National MS Society’sProfessionalResourceCenter is the most comprehensive library of MS information in the world, offering information, publications, clinical consultations, and literature search services.
Professional Resource Center

Dawn Russo
Dawn Russo, Senior Program Manager of the Greater New England Chapter of the National Multiple Sclerosis (MS) Society, guest Blogger

Finding Your Strengths – Locating a Massachusetts Time Bank Near You


In this month’s blog, we were introduced to Lynn Kilcoyne and Michael Doherty of the Time Exchange of the North Shore.  Time exchanges, also referred to as time banks, are an innovative option for people who want to give and receive services that can make a difference in each other’s lives.

How It Works

For every hour of service you perform for the time bank community, you receive one time dollar towards any service you need in exchange. Services may include child care, housekeeping, home repairs, cooking or simply providing transportation. No service is too small, as time exchanges offer the basic supports people need to get through the day.

Time Banks in Your Area

The following information will help you learn more about six time banks in your community within Massachusetts. Sign up and list what you would like to offer other community members. ..And if you’re not sure what you can give, coordinators will help you find your strengths and abilities.

Time Trade Circle
2 Corliss Place, Cambridge, MA
(617) 299-0882
Carol@timetradecircle.org, Louisa@timetrade.org (email preferred)
Serves Greater Boston area

Cape Cod Time Bank
5 Stage Coach Road, Harwich, MA
(508) 470-8587
John Bangert, capecodtimebank@gmail.com
Serves Cape Cod and Nantucket

Time Exchange of the North Shore
52 Andrew St, Lynn, MA
(781) 479-8407
Lauren Kilcoyne, lauren@timeexchangenorthshore.org
Serves North Shore area

Valley Time Trade
126 Main Street, 2nd Floor, Northampton, MA
(413) 585-0373
Jenny Ladd, vtt@commonwealthcenter.org
Serves Pioneer Valley

Cape Ann Time Bank
12 Calebs Lane, Rockport, MA
(978) 546-9551
Nancy Goodman, ngoodman52@yahoo.com
Serves Cape Ann area

Co-Act Timebank of Berkshire County
17 Cone Hill Road, West Stockbridge
(413) 232-7937
Michael Costerisan, michaelcosterisan@yahoo.com
Serves Berkshire County

For additional information go to www.timebanks.org

Giving Back: Time Exchange Promotes Ability verses Disability

Last week we were introduced the Time Exchange of the North Shore, a local organization committed to providing a sense of community to all of its members. This week we’ll meet Michael Doherty, a valuable member of the Time Exchange who understands the value in being able to give and receive support from others.

Why the Time Exchange?

Michael shared the reasons why he initially joined the Time Exchange.

“Three years ago I had a stroke and was unable to return to work-I was pretty successful as an international banker. It was tough at first, but once I adjusted, I realized that I wanted to give back to the community. My mother set the example when we were young by all her volunteering; she taught me that reaching out to your community is rewarding.”

Michael further explained the value of being able to give to others, despite the long term effects of his stroke.

“The time exchange is like the people in the past who all got together to build a log cabin for their neighbor. It gives you a sense of community. I chose this organization because they see me as someone who has something to offer, not as someone with a disability.”

A valuable exchange

Michael started building time exchange hours by using his truck to help people move. He knew he couldn’t do the lifting or carrying but he could do the driving and offer the use of his truck.

As he became more involved, Michael was asked to join the “Kitchen Cabinet”, a small group of members who support the coordinator and board in managing the organization. The kitchen cabinet meets once a month, with separate committees meeting more often. Every hour of meeting time is banked in the exchange for services.

As Michael built up his hours, it was his turn to ask for help.

“I had a walkway at home from my fence to a deck that I was having trouble with after my stroke. When some members of the exchange heard about it, they offered to rebuild the walk for me. It took three men all day; 27 hours of time exchanged. It was a great day with the music going and people working together. Now when my parents visit, they can even get over the hilly terrain.”

Everyone can give back

Michael summarized his feelings being able to contribute to others.

“Just because I am disabled, it doesn’t mean I can’t help. Every time I help someone else, I get a shot in the arm of my own self esteem. For people with disabilities, I would say you need to find out what you can do, not what you can’t.”

Neighbors Helping Neighbors: A Time Exchange Creates a Community

photo of Lauren Kilcoyne with signs about the Lynn Time ExchangeAs a child, I remember when the road in front of my house needed to be repaved; my father, along with the neighborhood men would get together and pave it. That was how things got done back then.

This month, I was reminded of that same community spirit when I interviewed Lauren Kilcoyne, Coordinator for the Time Exchange of the North Shore.
Here in Lynn, that sense of community lives on.

A community is born

The Time Exchange began in 1996 when a group of parents of children with developmental disabilities came together to offer each other babysitting and help with chores; simple but basic supports that made a difference.

As more people joined, they formalized the group into the Lynn Time Bank and received funding from the Department of Developmental Disabilities (DDS). For every hour of service given, a person would bank an hour of service to be used when needed

Over the years, they realized the time bank should include everyone, not just people with disabilities and their families. Lauren  describes the transition from the initial time bank into a larger community.

“We’ve reorganized in the last couple of years and have expanded from families within the DDS system to all populations, even expanding from Lynn to encompass the North Shore. We also include every ethnic group in our community since the area is so diverse.”

The organization’s new name, The Time Exchange of the North Shore, represents the wider community now being represented.

Everyone has something to offer

Lauren explains the reasons why people join the time exchange today.

“The sense of community is strong within the time bank membership. Meeting each other in the time exchange and putting faces to services makes it easier for people to request help”.scale and hour-glass

Presently there are 175 members of the Time Exchange of the North Shore that all give in a different way. There are tradesmen such as carpenters and electricians, along with others offering grocery shopping, companionship, childcare, and yard work.

Regardless of age, education or disability the idea of a time exchange is that everyone has something to offer their community; everyone.

And like the old days, neighbors are helping neighbors again and things get done.

Sound like a good idea?

Building a Community through Time Exchanges

Balance scale containing money on one side and time on anotherEveryone needs support in their life to be successful.

It may begin with physical support, someone to take care of us as a child and later, depending on needs, as an adult. We also have a basic need to know that someone cares, for it is this basic caring and respect for one another that will truly make a difference in our lives.

A sense of community is lost

There was a time when our local communities provided this support, with each member contributing regardless of age or disability.

Yet as society and government grew, we began to pay people to provide support and our sense of community was lost in the process. This was never the intent, as social services were supposed to create additional support not replace our communities.
But the truth is most of us don’t even know our neighbors anymore, never mind other people in our town to help us out when needed. Simple tasks such as shoveling the driveway, raking leaves or maybe buying groceries can be overwhelming if you have to pay someone because you can no longer do it yourself.

Time exchanges build community

The good news is  there are groups known as time exchanges that are bringing our communities back. Their approach is to bring people together committed to supporting one another and building a community based on mutual respect. Every member, regardless of age or disability, has something to offer based on their strengths and interests while in exchange, they receive donated services as needed.
This month we will introduce The Time Exchange of the North Shore (TENS), a successful program in our local area. Through interviews with their director, Lynn Kilcoyne and one of their members, Michael Doherty, you will be reminded of a simpler time when people went out of their way for one another simply because they cared about the people in their community.
As you read about the Time Exchange, think about your own community and how it provides support to you or someone you know with a disability . . . and if not, is it time to think about creating a time exchange in your community?