Month: October 2016

Advocacy: Making your Voice Heard!

Why is advocacy important?

gavel
Photographer: Joe Gratz

We vote our elected officials into office to write our laws. But many people feel too nervous to approach their politicians.  They may feel like they won’t be listened to or that they don’t have anything important to say. This is not true!If something is important to you, it is probably important to many others as well. Everyone’s voice should be heard.

But I don’t have the time!

As a mother of children with special needs, I know how hard it is to find time to get involved. Leaders want to hear the personal stories behind the numbers.They want to see pictures of people impacted by laws. If you are reading this blog, you can email your legislator your story and become part of a change for the better.

Where do I start?

If you don’t know who your state legislators are, then a great place to start is the Massachusetts State Legislature website. On the web site, there is a text box in the upper right hand corner. It asks you for your zip code. You type in your zip code and the web site will bring up information for your legislators. From there, you can choose to call, email or write your legislators depending on how much time you have and what your comfort level is. What is important is that you communicate your needs, thoughts and concerns with lawmakers. Your voice and your ideas could be what changes people’s lives for the better. You can be the change for the better.

For more information, you can also visit:

Genetic Testing for Children with Autism Spectrum Disorder (ASD)

young family talkingExperts are learning more each day about the role genetics plays in Autism. Sometimes Autism is caused by changes in a child’s genes or DNA. These changes can run in a family. Or, these changes can be new to your child.  A genetic test can help you learn more about these changes.

Why should children with Autism receive Genetic Testing?

•    Genetic testing can explain why a child developed Autism.
•    The test can help decide which services are best for the child.
•    A genetic test can help reveal other health problems in the child.
•    This test can help parents decide if they want to have more kids.

Genetic Testing does not tell you:

•    how a child will develop;
•    how well your child’s treatments will work;
•    who the parent of your child is; or
•    if you have HIV or have used drugs

It is not legal for your health insurance to change based on the results of this test.

A genetic test is often a blood test.  There are different kinds of tests. Your doctor decides which tests are best for your child.

To get Genetic Testing, a doctor can:
1.    order the genetic test; or
2.    refer a child to a genetics team

The genetics team are experts in genes. They can explain in more detail the genetic test and its results. Meeting with a genetics team is often helpful, even if testing is not done.

Many insurance plans cover genetic testing.  But, you should talk to your child’s doctor and insurance company before having the test.

Genetic testing can help children and their families. Talk to your doctor to see if it is a good option for your child.

To learn more:
Guidelines for Genetic Testing

What is Genetic Testing?