Month: May 2017

Disability in Islam

Young boys on wheelchairs praying side by side with other people in a mosqueAs a Muslim doctor who treats all children with different abilities, I ask myself: how does Islam look at people with disabilities?

Islam is the fastest growing religion in the world. There are around 1.6 billion Muslims around the world.

Both religion and common beliefs are important. They shape the way we see things.

Islam’s main books are Quran and Sunnah. Quran is the Muslim’s holy book. Sunnah is what the prophet Mohamed said or did.

In the Quran and Sunnah, there is no mention of the word ‘disabled.’ These resources used the word ‘disadvantaged.1

The Prophet Mohamed advised Muslims to care for people in need.

The Muslims built the first home and hospital for people with cognitive disabilities1.  They coupled a caregiver to each person with needs. It is the society’s duty to take care of the people with disabilities.1

The Prophet Mohamed stated that the disability is in the way Muslims view things and not in the physical loss.  ‘The visually impaired is not the person who lost sight of his eyes but who lost sight of his heart’ Hadith

The prophet himself visited and prayed at a visually impaired man’s house. At that time, people did not want to be seen around anyone with a disability. They believed that it affected their social status.

Allah Burdens not a person beyond his scope…Quran 2:286.

Rights of People with Disabilities:

The right to be taken care of:

{And do not give the weak-minded your property, which Allah has made a means of sustenance for you, but provide for them with it and clothe them and speak to them words of appropriate kindness.}2 Quran 4:5.

The meaning of the Arabic translation for ‘Weak minded’ is either children or people who are lacking decision-making skills, emotional strength, or intellectual capacity. This is Islam‘s first step to building ‘guardianship for individuals with disadvantages’: It means we should care for them until they can make their decisions. It means we should be kind to them.

The prophet Mohamed visited sick, visually impaired people and other people with disabilities. He encouraged his followers to do the same. The prophet meant to lower their suffering. He did not want them to be alone.1

Allah gives some people wealth and asks them to pay their duties. Islam encourages donations (Zakat). Muslims can spend the Zakat on “people with disabilities” as well as on the poor. This zakat is to ensure social justice. One of Allah’s titles is {The Just}.

The right to be protected:

Islam is against doing harm to people with disability. This harm can be physical or emotional.

{Believers, let not a group of you mock another. Perhaps they are better than you. Let not women mock each other; perhaps one is better than the other. Let not one of you find faults in another nor let anyone of you defame another. How terrible is the defamation after having true faith? Those who do not repent are certainly unjust}3. Quran 49:11

The right to be educated:

{He frowned and then turned away from a blind man who had come up to him You never know. Perhaps he wanted to purify himself or receive some (Quranic) advice which would benefit him}4. Quran 80:1-4

We understand from this story that a person who is visually impaired has the same right to learn. This person should receive equal treatment. Islam promotes learning for everyone.1,5

The right to marry:

In early Islam, there was a person named Julaybib who had a deformed face.  People at that point did not want to be around him. One day, the Prophet asked him why he is not married yet?  And Julaybib replied: ‘No woman will accept me.’ The Prophet sent him to propose to a girl from a well-known family. Her father refused the proposal and sent him away. When the girl heard the news, she insisted on meeting Julaybib. She agreed to his marriage proposal when she saw that he was kind and has a good faith. This story indicated that Islam encourages the acceptance of ‘people with disabilities’ as part of the society. And it is important to get married and build up a family.1

Do people with disabilities have the right to marry? Can they carry on the responsibilities of a marriage life? To love and to be loved is a natural need. Sexual needs are basic needs. These needs are present in people with disabilities. They have the right to have a partner. In certain cases, such relationship may need to be supervised by a guardian.

What is the general Muslim’s view on disability?

Muslims’ public view on disability is based on their faith. Allah had created us and our destinies. If it is meant to happen, it will happen. Life is a test, and it is up to us to pass it or fail it.

Islam teaches us:  if we do ‘an atom’s weight of good’ we will be rewarded. And if we do ‘an atom’s weight of evil’ we will see it. Taking care of people with needs is rewarded in this life and the afterlife.

Some Muslim parents feel guilty about having a child that is not ‘normal.’ They feel that they are punished for something they did. This feeling can delay seeking help. This guilt has led to shame. Families tend to hide their children with apparent disabilities to avoid this shame.

It is fine to believe in destiny and search for treatment. ‘Allah has not sent down a disease except that He has sent down its cure ‘6

People feel ashamed when having a child who is different. They think they were envied (Hasad or evil eye). Having seizures can be looked at as ‘Jinn Possession’ or even black magic.  These are common beliefs with no clear Islamic roots for them. In the Quran, it states the power of Hasad. We can protect ourselves by having faith in Allah.

The Muslim in modern time:

Nowadays, there is an increased awareness of the special needs of people with disabilities.  There are more mosques now accessible to people with physical disabilities.  Quran recital is recorded and can be read in Braille (Saudi and Malaysian versions). Sign language interprets Friday’s khutbah in some mosques. In Hajj (pilgrimage to Mecca) there are distinct paths to do ‘Tawaf’ around Kaaba using wheelchairs with the help of volunteers.  There is a recent application that a group of Malaysian researchers is working on to teach children with autism how to pray.

We are hoping for a brighter future. There are more Muslims with disabilities asking for their rights. They are seeking to get their needs met. We hope that the religious institutes will help them in getting what they need.

I hope that we find the cure for all illness {And when I am ill, it is He Who cures me}7 Quran 26:80

Resources:

  1. Islam and the cultural conceptualization of disability, Hiam Al-Oufi, Nawaf Al-Zyoud and Nobayah Shahminan, Page 205-219, published online 15 March 2012, https://eis.hu.edu.jo/Deanshipfiles/pub110133790.pdf
  2. http://corpus.quran.com/translation.jsp?chapter=4&verse=5 Sahih International translation
  3. http://corpus.quran.com/translation.jsp?chapter=49&verse=11 Muhammad Sarwar translation
  4. http://corpus.quran.com/translation.jsp?chapter=80&verse=1 Muhammad Sarwar translation
  5. Disability in Islam: Fully Enabling Our Community, Shad Imam, 18 December 2013, http://almadinainstitute.org/blog/disability-in-islam-fully-enabling-our-community/
  6. http://tibbenabawi.org/index.php?option=com_content&view=article&id=68&Itemid=97
  7. http://corpus.quran.com/translation.jsp?chapter=26&verse=80 Yusuf Ali translation

For more readings:

An Autistic Goes to Grad School – First Time Blog

Hey, my name is Sara.  I’m Autistic.  I have other Disabilities too.  I like to say a laundry list four differently-colored interlocking puzzle piecesof them.  I’m going to talk about Autism and grad school here.  And why I’m going.  And how long it took me to get a regular college degree, and why.

I’m scared.  I feel like graduate school will be a next level to regular college.  I have trouble with organization.  I have trouble with time management.  Depression makes me tired and low energy.

I have already been talked to about going off topic in class in the first week.  It wasn’t really off topic.  The rest of the class and the teacher can’t see the patterns I see and how all of it was connected.  I think another Autistic would have.  The teacher was nice about it.

A classmate talked to me too.  I thought she was being nice, then I wasn’t sure.  I took it as I heard it, and then I started to wonder.  Was it about my ‘lack of social cues’ or about their lack of comfort?  The thing about Autism is I can’t know which it is.  If I asked, would people tell me the truth or not?  Thinking about this kind of tiny little social lie makes me crazy.  It feels like betrayal to tell them.  But people do it all the time.  I can’t tell them or know when to tell them or when not to.  Wouldn’t it be better if we all just didn’t?  How is it polite?  Makes me feel even more apart.

When I get in to school early, I take time to separate off and play simple games on the iPad or iPod to relax my mind and be less affected by lights and sound.  So I can have enough energy reserved for getting through classes.

The next week, I got things said to me I’ve heard before, but are never easy to hear and are never cool.  I hate hearing them.  They make me feel not.

  • Not Autistic enough.
  • Not Disabled enough.
  • I don’t need help.
  • I don’t need support.
  • I don’t
  • Not as much as others, so it doesn’t

Life isn’t a competition.  It hurts even more because my mother always compared my and my brother’s levels and types of Disabilities.  If you don’t ‘look Disabled’ or ‘act Disabled’ then you always seem to get doubted, and people get mad at you.  Like there’s a pot of Disability to reach into and smear across your face.

  • I wish my child was able to do all you can.
  • You need to understand not everyone is like you.
  • My child is so much more
  • My child is much lower
  • If my children could just sit there, their lives would be amazing.

Way to suck the worth from my life.  I am not here to be compared to.  I am a person all on my own.  This needs to be.  I need to be.  I am made less human if not.  I wrote a poem about all this.

Here.  This video will help.  It’s called “Shit Ignorant People Say to Autistics.”  Maybe you can relate. I love this video.  It always makes me laugh and nod along.

Oh, Behave!

Sometimes bad behavior is a sign of a health issue.  For many children with an intellectual ""disability (ID), the first sign of a health issue can be a change in behavior.  Sometimes people think the ID is the reason for the behavior.  And the health issue is missed.

Our Story: School Problems

I am the parent of a child with Down syndrome.  In fourth grade, our daughter’s teachers told us she had been struggling with behavior issues every day.  They said she was tired.  And they said she couldn’t handle a full day of school.  They said school was hard for her because she spent the day with peers who were not delayed.  She had problems for weeks, but they didn’t tell us.

Testing Reveals Tummy Trouble

Around the same time, our daughter had a triple-scope of her GI system.  The doctors wanted to know if she had celiac disease.  (Celiac disease causes the body to get sick when a person eats wheat.) Instead, we found out that she had very bad reflux disease (GERD).  The GERD made her belly and throat hurt a lot. Right away, she started medicine to reduce the amount of acid in her stomach.  And we changed her diet to remove the food that hurt her tummy the most.

At our next meeting with the school, we talked about my daughter’s behavior problems again. The school said they saw a problem every afternoon around 1 PM.

Putting It Together

At the meeting, we shared the “home update.” Part of the update included the results of the tummy testing.  We also talked about the changes to her diet that we were making at home.  One of the teachers spoke up.  “I guess we should stop letting her buy orange juice at lunch every day?”  And there it was.  We had our answer to the afternoon behavior problems.  Orange juice can increase painful reflux, and probably made her tummy hurt every day.

Figuring Out Our Mistake

We had all attributed her behavior to her disability. Low energy? We figured it was due to Down syndrome.  Feeling overwhelmed by the classwork, and the language demands of her peers?  That was caused by her low IQ.  The school was so certain that her behavior was related to her disability, and not a sign of something medical, that they let weeks elapse before bringing the problem to our attention.  As her parents, we did not suspect a medical cause either.  It was only luck and good timing that caused us to do the GI testing at that time, giving us the answer to a question we didn’t know we still had.

The Research

For people with intellectual disabilities, physical distress is often associated with changes in mood, mental status, and behavior, as a significant “setting event” (an event that increases the probability of occurrence of problem behaviors). (Gardner & Whalen, 1996;, Gunsett, Mulick, Fernald & Martin, 1989; Carr, Smith, Giacin, Whelan, & Pancari, 2003).

Despite the documented link between health concerns and problem behaviors, medical causes for agitated behavior may frequently be missed in people with ID because they are often poor reporters of their own health issues. (Charlot, Abend, Ravin, Mastis, Hunt & Deutsch, 2011)

Conclusion

When a change in behavior is observed, medical causes should be considered first.  This is true of all children.  It is especially true for children with ID.  Children with ID are often less able to share that they are hurting somewhere. And research has demonstrated that behavior problems due to health issues are missed in people with ID.  Their caretakers should first figure out if any behavior is related to a medical cause.

For more information about behavior issues that are not caused by health issues, the book Supporting Positive Behavior in Children and Teens with Down Syndrome contains a wealth of information. (David Stein, Psy.D., Woodbine House, 2016)