two white roses

Through our blogs this month we have learned that people with disabilities, like everyone, deserve to live out their lives with respect and dignity. And when faced with a choice on where to receive end of life care, many people are choosing to die at home.

Through the stories shared, we also learned about hospice and their essential role in providing services and support to everyone in the process.

The Hospice Care:  A Consumer’s Guide to Choosing Hospice Program is a helpful guide to make educated decisions about end-of-life care.

In Massachusetts there are sixty two licensed hospice programs.  If you are looking for a hospice program in your area, the following website is extremely helpful.

Hospice Palliative Care Federation in Massachusetts
(781) 255-7077

Alphabetical Listing of Hospices
Hospice Locator by Town
Hospice Locator by Services
Hospice Residential Facilities

Caring Connections offers information on the health and wellness of the family caregiver, bill management, home care help & community outreach resources.

VNA Hospice Care covers towns in Eastern Mass
Works with individuals with intellectual disabilities in group homes in collaboration with the Department of Developmental Services.  Staff works closely with residential and day program staff to help individuals function to their best capacity, in comfort and joy.

On our website, New England Index also has a listing for hospice care at home or in a residential setting. – Hospice Care -At Home Hospice Care – Residential

It is important to note that the VNA Hospice Care program in Woburn was the only resource I could find that works specifically with individuals with intellectual disabilities in group homes. They are available to offer support and training to service providers on hospice services and philosophy. For more information about hospice for individuals with intellectual disabilities contact VNA Hospice Care at (781) 569-2888 or Nancy Ledoux,VNA Hospice Care Chaplain,  voice mail at  (781) 569-2822.

Let us know if you have experience with any other hospice programs in the state that you personally would like to share.

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