Category: Cognitive Disabilities

Tips for Coping with Holidays & Holiday Assistance

Happy Holidays with leaves and berries wreath

The winter holidays are almost here. INDEX staff updated two fact sheets that people might find helpful.  Holidays can be fun.  They may be stressful for many people and families. 

Our Tips for Coping with the Holidays fact sheet  has resources for dealing with:

  • Stress
  • Mental Health
  • Grief
  • Caregiving
  • Physical Disabilities
  • Special Needs
  • More

Our Holiday Assistance fact sheet has resources people in need of help with:

  • Food pantries, food baskets and holiday meals
  • Food delivery for seniors and people with disabilities
  • Gifts for children
  • Financial help including help with utilities 
  • Other resources

Some resources are state wide. Others are listed by county, town or city. 

We hope that these tips and resources may be helpful for people in need.

Sexual Assault and Prevention Resources for People with Disabilities (PwD)

Sexual abuse can be seen as unwanted sexual activity. It can be touching or showing body parts.  Abuse can be done by using force, bribes, stalking and threats. 

 People with disabilities (PwD) face many challenges and have very different needs. Some disabilities may put people at more risk for crimes like sexual assault or abuse. PwD may not be taken seriously when they make a report of sexual assault or abuse. They may not know how to report abuse. They may be scared to report what happened to them. They may fear what will happen to them after telling someone else. 

People with intellectual or developmental disabilities (IDD) experience sexual assault at up to 7 times higher than people without disabilities. They are less likely to receive services that help stop violence. They get less support healing from pain and trauma. Research shows only 13% of PwD survivors with disabilities receive victim services.

People with intellectual or developmental disabilities (IDD) may not understand or lack information about healthy sexuality. They may not have had sex ed classes. They may not know the kinds of touching that are good or bad (appropriate or inappropriate). This can be very hard. A person’s disability may require other people to touch them to provide care. Someone who has IDD may not be able to agree to sexual activity. Many people with IDD are survivors of sexual abuse. 

INDEX has a new fact sheet on Sexual Assault and Prevention Resources for People with Disabilities.  We have info for people in Massachusetts and national resources. 

Some areas are:

  • Ways to report sexual abuse
  • Rape Crisis Centers info
  • Domestic violence programs
  • Hotlines

Massachusetts Disabled Persons Protection Commission (DPPC) Hotline: 800-426-9009

Summer Recreation

Summer is here! Time to enjoy the warmer weather and have fun.

Here are some programs and places to enjoy this summer.

Accessible Cape Cod 

Wheelchair accessible beaches on Cape Cod.

Accessible Pools & Spray Decks 

Outdoor swimming pool lifts are available at all of the State Parks and Recreation Department’s 20 swimming pools. The pools are free. Contact pool directly for information about other site factors affecting accessibility.

Access Recreation New England

Connecting people with disabilities to accessible recreation opportunities

Broadmoor Wildlife Sanctuary

Offers nine miles of walking trails guiding through a variety of field, woodland, and wetland habitats. A quarter-mile, handicap accessible trail and boardwalk along the bank of Indian Brook in Natick. Universally accessible facilities: Nature Center, Restrooms, All Persons Trail.

Mass Dept of Conservation & Recreational Universal Access Program

Provides outdoor recreation opportunities in Massachusetts State Parks for visitors of all abilities. Accessibility to Massachusetts State Parks is achieved through site improvements, specialized adaptive recreation equipment, and accessible recreation programs.

Piers Park Adaptive Sailing

Provides programs for disabled youth and adults aboard 23-foot sonar sailboats on a no charge basis. Serves those with amputations, paralysis, cerebral palsy, muscular dystrophy, autism, hearing impaired, sight impaired, intellectual disabilities and other disabilities. Successfully integrates youth with disabilities into summer youth sailing programs.

Smile Mass Local Beach Wheelchair Locations

Smile Mass has both fresh and saltwater beach wheelchairs available across the state. Wheelchair users can access beaches and enjoy the water.

Spaulding Adaptive Sports

Offers adaptive sports and recreation activities in Boston, Cape Cod and the North Shore.  Includes wheelchair tennis, hand cycling, adaptive rowing, waterskiing or windsurfing.

Click on the links for more info. You can go to our Recreation Opportunities for People with Disabilities fact sheet to find more choices for people of all ages, abilities and skill levels.


INDEX Summer Camp Resources 2023

We have updated Summer Camp resources for children with disabilities. Camp listings are for day and residential camps. Camps are located in Massachusetts, New England, and beyond. Check our listings for specific camp information and openings. Cost varies by type of camp and programs offered.

Camps offer a big range of programs and activities. Camps may have available openings and wait lists. Each camp has its own eligibility requirements. If you have questions, please contact each camp for details.

INDEX Summer Camp Resources 2023

Renew your MassHealth Coverage

INDEX wants to remind people that MassHealth renewal time is here. Renewal is important for people with disabilities in Massachusetts who have MassHealth.

DDS supported individuals with MassHealth may need extra help with their renewals.

MassHealth is here to help renew your MassHealth coverage!

Learn about the MassHealth renewal process and what it means for you.

Did you or the head of your household recently receive a notice from MassHealth saying that you need to renew your coverage, or that you have been automatically renewed?

That’s because every year, MassHealth reviews members to make sure they still qualify for coverage through MassHealth, the Health Safety Net, or Children’s Medical Security Plan.

If you received a notice saying you must renew, please respond by the due date listed in your renewal notice or your benefits might decrease or end.

Please be sure to contact MassHealth with any updates to your

  • address, phone number, email, income, or
  • other members in your household within 10 days of the change.

You can renew:

  • Online
  • By phone
  • By mail
  • By fax
  • In person

How to renew your MassHealth coverage: https://www.mass.gov/how-to/renew-your-masshealth-coverage

Supporting Siblings of Autistic Children with Aggressive Behaviors

Emily Rubin, Director of the UMass Chan Medical School Shriver Center’s Sibling Support Program, shared information about siblings experiencing aggression from autistic brothers and sisters.   In a Q&A session with Autism Speaks, Emily discussed aggression and other severe behaviors.

The Sibling Support Program: A Family-Centered Mental Health Initiative is a community-based program offered by UMass Chan Medical School. 

Families interested in the Sibling Support Program: A Family-Centered Mental Health Initiative can contact Emily directly at emily.rubin@umassmed.edu. They will receive information about the program, a permission form and Zoom link to log in. 

Read Emily Rubin’s Autism Speaks Q&A Session

Seen and Heard: IDD Community

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The Seen and Heard: IDD Community is Partnership Project of Strategic Education Solutions and INDEX program of the Shriver Center at the University of Massachusetts Chan Medical School.

The Seen and Heard: IDD Community is making videos about sexual assault prevention and recovery. Our videos are made by and for people with IDD who are survivors or just want to learn about staying safe. James Meadours, a self-advocate and our team co-leader, shares his experiences and thoughts. James speaks out for others with IDD who are survivors or just want to learn about staying safe. Sexual assault prevention and recovery are important.

You can watch the videos on Seen and Heard: IDD Community YouTube channel. Please be sure to subscribe and like these videos.

Massachusetts Department of Public Health (DPH) Linkages Program

The Department of Public Health’s Linkages Program evaluates, refers and links persons 18 and older with intellectual and developmental disabilities to preventative health care and health promotion programs in their community.

Based off participants responses to a series of surveys and questionnaires the Linkages Program zeros in on common trends and remarks in order to coordinate an individualized plan of action for each participant. The Linkages Coordinator meets with potential participants either virtually, over the phone, or in-person to see what their health needs are and then works with the participant to link them with providers or other services.

The Linkage Program looks to remove barriers and hardships to healthcare access, health promotion activities, and mental health care needs. The program encourages participants to be confident, self-reliant, and knowledgeable about their rights and resources that are available to them.

As the Linkage Coordinator, Phelicha is committed to creating an environment that is inclusive, supportive and relevant. She aims to provide immediate one on one consultations that collaboratively prioritizes participants needs and goals. Thus, ensuring that each person alongside their support systems feel seen, heard and understood.

Please contact Phelicha!

-Phelicha Berdet, Linkage Coordinator, MA DPH Health and Disability Program

Email Phelicha.D.Berdet@mass.gov

Cell Phone: 617-279-3730

EasyCOVID-19 Project Now Recruiting!

Please help EasyCOVID-19 simplify COVID-19 info world wide!

The EasyCOVID-19 project is now recruiting people to help us simplify COVID19 terms. Please help us by visiting our EasyCOVID-19 crowdsourcing app. This is the start of our project to simplify the COVID-19 information published by every country’s government websites.

Overall Plan

We will start with the Massachusetts. We will then expand to the other U.S. states. We will then move to the 18 English Speaking countries, then the 21 Spanish speaking countries, then the world! This will help many huge populations, such as people with cognitive disabilities, non-native language speakers, the Deaf, and seniors. When they understand how to be safe and healthy, the whole world will be safe and healthy.

Our project would not be successful without:

Please help us now!

For more info, see our EasyCOVID-19 Website!