Category: Parenting

Tips for Coping with Holidays & Holiday Assistance

Happy Holidays with leaves and berries wreath

The winter holidays are almost here. INDEX staff updated two fact sheets that people might find helpful.  Holidays can be fun.  They may be stressful for many people and families. 

Our Tips for Coping with the Holidays fact sheet  has resources for dealing with:

  • Stress
  • Mental Health
  • Grief
  • Caregiving
  • Physical Disabilities
  • Special Needs
  • More

Our Holiday Assistance fact sheet has resources people in need of help with:

  • Food pantries, food baskets and holiday meals
  • Food delivery for seniors and people with disabilities
  • Gifts for children
  • Financial help including help with utilities 
  • Other resources

Some resources are state wide. Others are listed by county, town or city. 

We hope that these tips and resources may be helpful for people in need.

COVID-19 Materials for People with Intellectual and Developmental Disabilities (IDD) and Care Providers

With the number of COVID-19 cases increasing, and programs and schools reopening, it is important to continue to share info and use good practices to stay safe.

The Centers for Disease Control (CDC) created plain language materials for people with IDD and care providers.

The materials on their page were made to help make communicating about COVID-19 a little easier. Pick from videos, posters, social stories, and interactive activities to best meet your needs.

Areas covered include:

  • Getting a Covid-19 Shot
  • Washing Your Hands
  • Getting a COVID-19 Test
  • Masking
  • Social Distancing
  • Information for Caregivers

Please look at the CDC info and share with others.

COVID-19 Materials for People with Intellectual and Developmental Disabilities and Care Providers

Celebrating Holidays During COVID-19

This holiday season will be different for most of us.  Here are some resources to help families cope with the challenges that COVID-19 brings to friends and families.  Practicing safe social distancing and limiting gathering sizes is important.  Practicing safety measures such as mask wearing and hand washing can reduce the risk of spreading COVID-19.

Many families and groups of friends are planning on holding virtual parties and get togethers.  Zoom, FaceTime, Google Duo, Skype, Facebook Messenger, and Snapchat are some options. Scheduling a get together works best so that people can all be together virtually at the same time.  You can send invitations.

Popular Science has some suggestions for hosting a virtual party or get together.

Holiday Resources:

Bullying, Workplace Harassment and Sexual Harassment

INDEX has updated our Bullying, Workplace Harassment and Sexual Harassment fact sheet with new resources related to diverse populations.  We hope that you will find these resources helpful in school, work and personal life.  Stopping and preventing Bullying and Harassment are important in the US today.

Unwanted, aggressive behavior among school aged children that involves a real or perceived power imbalance. It can be actions like name calling, hitting, kicking or spitting, telling lies and spreading rumors, taking things that belong to someone else, or forcing others to do things they do not want to do  The behavior is repeated, or has the potential to be repeated, over time. Both kids who are bullied and who bully others may have serious, lasting problems. Children and adults with disabilities are 3 times more often to be involved with bullying or harassment than non-disabled peers.

Bullying, Workplace Harassment and Sexual Harassment  

 

 

Center for Disease Control (CDC) COVID-19 Virus Information

Important information from the Center for Disease Control (CDC) about Coronavirus Disease 2019 (COVID-19).  Please read and share with others.

Center for Disease Control (CDC) Symptoms of Coronavirus Disease 2019 (COVID-19)

Read this important information from the CDC about Coronavirus Disease 2019 (COVID-19). Please share with others.

Symptoms  (pdf)

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Center for Disease Control (CDC) Stop the Spread of Germs

Please read and share this important information to ways to stop the spread of germs (pdf). Help prevent the spread of respiratory diseases like COVID-19.

*** Please also read the COVID-19 information on the CDC site

 

 

Little Lobbyists

 

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I am the parent of a child with a disability. She has a lot of medical needs too.

Kids who have a lot of medical needs can have a nurse in their home. MassHealth approves this service.

Parents have a hard time finding nurses. There are not enough nurses working in homes.

Nurses who work in homes make a lot less money than nurses in the hospital. This is a big problem. 

The campaign started in April 2016 to help parents find nurses at home. 

Nurses at home keep kids: 

  1. Safe
  2. Healthier
  3. Out of the hospital
  4. Attending school
  5. Being in the community

 

If you want to learn more, email manursingcampaign@gmail.com.

Getting Ready for Emergencies with Persons with Disabilities

"Woman hugging child"

Emergencies happen often. A family member might get badly hurt. Your home might lose power. You may need to leave your home because of a storm. Emergencies are hard for my sister, Emily. Emily has Down syndrome and autism.

There are ways to prepare for emergencies ahead of time. There are also ways to deal with emergencies when they happen.

Tips on how to get ready for emergencies ahead of time:

  1. Write Down Your Routine. Make a list of your family’s daily routine. Keeping a routine is often important for people with autism. It is helpful to have this written down to help your family keep up with it in an emergency. More information on autism and routines here.
  2. Ask for Help. Make a list of people who are able to help your family. One way of doing this is a phone tree. You will just need to call one person. That person might be able to help your family. If not, then it will be that person’s job to call the next person on the call list. These are phone tree templates.
  3. Pack a Bag. It is helpful to have an emergency bag packed if you need to leave home in a hurry. Download a packing list for people with disabilities. 

Tips on how to deal with emergencies when they happen: 

  1. Be Patient. Emergencies are stressful. People might act differently than usual. Try to understand how yourself or your loved one with disabilities might be feeling. Also, try to think about why people might be acting certain ways.
  2. Try to Have Fun. Try to find ways to include fun in whatever you might be dealing with. For example, if the lights go out—you might build a fort with sheets. Sit inside with flashlights.
  3. Be Helpful. It can be hard to sit still when something bad happens. It might be good to help others if it is safe.

 

For more info on getting ready for emergencies for yourself or your loved ones with disabilities, please visit: the Center for Disease Control Emergency Preparedness website or the UMass Medical Emergency Preparedness and Response website.

Lessons in Listening

I have learned a lot from all of my children – about who I am, what matters, how right my own mother was!  What it means to listen, to really listen, as a mom and as a therapist, was shown to me through my journey with my youngest child.  In today’s blog, I’d like to start at the beginning of that journey.

When I was pregnant with my third daughter, I thought I knew all that I needed to know to take good care of her and enjoy doing it.  I had two children who were healthy and happy and well-adjusted and I hadn’t broken them or steered them wrong.  I was going to relax with this new baby.  I was going to revel in her small-ness and snuggle her all day and not worry as much about schedules and routines and all the concerns of new moms.  I knew how to do this.  I really had given it that much thought!  So when just days after my sweet girl was born I learned that she was deaf, I was more than a little thrown.  I did not know how to do this.

*More than 95% of deaf and hard of hearing babies are born to hearing parents.*

For five days I thought everything was fine.  I fed her and held her and shared her with her sisters.  I was a tired but happy and confident mom.  Minutes after learning she was deaf, I questioned everything.  How could it be that she hadn’t heard me sing to her, talk to her, let her know I was there?  Was she scared?  Was she ok?  How would I tell her stories and talk to her about boys? I had so much to learn and it did not feel like I would ever have the energy it would take to figure it all out.

*My daughter was the first deaf person I ever knew.*

I remember those days early in her life.  I felt lost when I thought too much, but she was happy and healthy and she responded to me.  She liked to be close.  She liked to eat!  She liked to sway and dance.  I remember feeling silly singing to her because she couldn’t hear me.   I touched my lips to her forehead as I sang and hummed anyway.  I touched my face to her cheek when I told her I loved her.  She couldn’t hear me, but I could listen to her, for her.  I could pay attention in a new way.

If you are the parent of a new baby who is deaf or hard of hearing and want information on resources for you or your child, connect with the MA Universal Newborn Hearing Screening Program.

Massachusetts Pediatric Home Nursing Care Campaign

 

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I am the parent of a child with a disability. She has a lot of medical needs too.

Kids who have a lot of medical needs can have a nurse in their home. MassHealth approves this service.

Parents have a hard time finding nurses. There are not enough nurses working in homes.

Nurses who work in homes make a lot less money than nurses in the hospital. This is a big problem. 

The campaign started in April 2016 to help parents find nurses at home. 

Nurses at home keep kids:

  1. Safe
  2. Healthier
  3. Out of the hospital
  4. Attending school
  5. Being in the community

If you want to learn more, email manursingcampaign@gmail.com.