Tag: Health Care

Keeping Colon Cancer Away

picture of a person colonKeeping healthy is important for everyone.  People who have developmental disabilities need to do the same things to stay healthy as everybody else.  This can be hard. Doctors and nurses do not always talk with people who have disabilities about staying healthy.  Doctors and nurses can be very busy fixing health problems. Sometimes they forget to try to stop problems before they start.

Why is staying healthy so important?

  • Because we feel good when we are healthy!
  • It is easier to stop sickness before it starts. It is harder to make sickness go away once we have it.

Colon cancer is a type of sickness that is very common in people who have disabilities.

  • Cancer is what happens when our bodies grow extra pieces inside that are not supposed to be there.
  • When cancer happens in the colon, it is called colon cancer.
  • Our colons hold our solid waste, or poop, until it is time to let it out of our bodies.

Colon cancer is very serious. It can:

  • Make you feel sick.
  • Make it hard to eat and drink.
  • Cause problems with using the bathroom
  • Be very painful
  • Sometimes, make you die.

There is some good news. There are a lot of things we can do so we do not get colon cancer. We can also get checked by a doctor or nurse to catch colon cancer in our bodies before it makes us sick.

First, let’s talk about preventing colon cancer. This means we will talk about the things we can do to keep from getting colon cancer.

  • The food you eat is very important to keep your colon healthy. Eating a lot of red meat like beef, pork, or lamb is bad for your colon. It is also bad to eat a lot of sandwich meat or hot dogs.
  • You can help your colon by eating more fruits, vegetables, and whole grains like oats, brown rice and 100% whole grain breads. Be sure to speak to your doctor before you make any changes to your diet.
  • Keeping a healthy weight, or not having too much fat on your body is also important to keeping your colon healthy. You should ask your doctor what a healthy weight is for your body. Also ask what kind of exercise you can do to lose weight or keep a healthy weight. Even if you are not overweight, staying active is important to keep your colon healthy. Any activity that is more than you usually do may help your colon stay healthy!
  • Our bad habits can be bad for our colons, too. If you smoke, try to quit. Ask your doctor what you can try to help you quit. There are special medicines that can make it easier to quit. There is a pill, a skin patch and a special chewing gum. If you drink alcohol, drink no more than one drink a day if you are a woman.  If you are a man, drink no more than two drinks a day.  If you drink alcohol every day, make sure you tell your doctor. Also tell your doctor if you plan to drink less or stop drinking.

Sometimes we can still get colon cancer even if we are healthy. There is good news, though. If colon cancer is found early, doctors can treat it before it has a chance to make us sick.

To catch colon cancer early, talk to your doctor!  Tell the doctor that you would like to know more about getting checked for colon cancer. Usually you start getting checked for colon cancer once you are 50 years old. If someone in your family has had colon cancer, make sure to tell your doctor or nurse. They should talk with you about getting checked for colon cancer sooner.

There are a few different ways that you can get checked.

  • The most common way is to have a test called a colonoscopy. The day before the test you will drink a special drink or take some medicine. This will make you empty your bowels, or poop. At the test you will be given medicine to help you relax and sleep. The doctor will look inside your colon with a small camera.  The doctor will look to see if there is any colon cancer. If there is cancer that is still small, the doctor will remove it. The doctor can also remove any small polyps. Polyps are pieces of your colon that look like they might turn into cancer.  This test should be done every 10 years. If colon cancer or polyps are found, you will need to have this test more often.
  • A sigmoidoscopy is like a colonoscopy. But, it doesn’t look at your whole colon. This test uses a small camera. It looks inside the lower part of the colon, called the sigmoid colon. Sometimes this type of test is easier for people to have. You do not need to drink the special drink or take medicine that makes you empty your bowels, or poop. You also usually do not need medicine to make you relaxed and sleepy. This test should be repeated every 5 years.
  • There is a new type of test called Cologuard. You do not need to drink a special drink or take medicine first. You can do this test at home. First, you collect a small bit of solid waste, or poop. Then you send it in a special kit in the mail. The kit checks your solid waste, or poop, for a change in a chemical called DNA. This change may mean you have colon cancer. Then you’d need to have a colonoscopy to check for sure. Not everybody can have this kind of test. You should not have this test if you have had colon cancer. You should not have this test if you have colon problems. You should not have this test if somebody in your family has had colon cancer. This test should be repeated every 3 years.

Maybe you have read all of this and you are thinking that keeping colon cancer away sounds like a lot of work. Or, maybe you are having a hard time deciding what to do first. The most important thing you can do is talk with your doctor! Tell the doctor that you would like to stay healthy and keep colon cancer away. Doctors and nurses love to help people stay healthy. Sometimes they just need a friendly reminder about checking for colon cancer!

For more information, visit:

The American Cancer Society

https://www.cancer.org/latest-news/understanding-tests-that-screen-for-colon-cancer.html

Colon Cancer Alliance

https://www.ccalliance.org/get-screened/prevention-and-screening/

 

Challenges in transition from child doctor to adult doctor

Doctor with young adultBackground:

I work with families who have young children with autism spectrum disorder (ASD). Parents interface with Early Intervention, public schools, and pediatrics. For a person with autism, age 22 marks the end of many childhood services. But autism doesn’t go away at age 22. One transition is the switch from child doctor to adult doctor. This can be a difficult task. Adult doctors often have little training in ASD. As a result, they may not be familiar with autism-related issues.

ASD service systems reflect the idea that it is a childhood disorder. Yet autism is lifelong. The rate of autism diagnosis is increasing. Children with ASD grow up to become adults with ASD. Our service systems need to catch up. We need to advocate for systems that better serve people throughout their lives. This includes better training for adult doctors. Recent studies show that adult doctors don’t have enough autism knowledge. The good news is that they seem interested in learning.1

Why is this important?:

  • Some health conditions maybe related to autism, or they may not  It is important for the doctor to know the difference.
  • People with autism may require unique needs for doctor’s visits.
  • Primary care doctors should be familiar with ASD services. This way, they can make referrals as needed.
  • Primary care doctors need to look at the big picture to provide good care. This includes things like housing, social life, family, and job. The doctor needs to understand how ASD impacts a person’s life.
  • A good primary care doctor can be an important advocate. He or she can help a patient access services.

How to find an adult doctor who understands autism:

  • See this list of doctors that serve people with ASD in Massachusetts.
  • Reach out to Autism Support Centers and local autism agencies to request help.
  • Find a doctor, at a teaching hospital, who may be more up-to-date with the latest research.
  • Contact the doctors’ offices and ask questions about their experience with ASD.
  • Refer to this healthcare toolkit, which provides tips on how to find the right doctor.
  1. Sarris, Marina. The Challenge: Finding Health Care Providers For Adults with Autism. Interactive Autism Network at Kennedy Krieger

Institute. 8 April 2016. https://iancommunity.org/ssc/finding-health-care-providers-adults-autism